Alabama Lifespan Respite Resource Network - Sharing the Care


Respite News

Advocacy, Alerts, and Announcements





Contact Alabama Elected Officials - Representatives in Congress, the state legislature, and locally.

National Lifespan Respite Coalition - Updated news on the Lifespan Respite bill.

**** PLEASE note: Alabama Respite has a new address and phone number.We are unable to make a change at this time to our old phone number and address that appears on our home page. Please do not try and call our old number at 205 991 0927. Contact us at:

1521 East 9th Street
Anniston, Alabama 36207
256 237 3683

Our email address remains the same: alabamarespite@aol.com

Morgan Stanley Smith Barney Cordially Invites You to an Informational Seminar

Planning for Families with Special Needs

Did you know that if you give a person with special needs more than $2,000 a year in his or her own name, that person may be disqualified for government benefits?

Fortunately, there are ways to protect those benefits. A Special Needs Trust is one of the key ways for your disabled loved one to receive an inheritance or gifts and still be eligible for Supplemental Security Income and Medicaid. Our seminar will cover:

• Preventing the loss of government benefits, including Supplemental Security Income

• Providing additional income to facilitate a better quality of life

• The role of a trustee and how to select one

• Balancing the needs of other family members and beneficiaries

6:30 p.m. to 7:30 p.m. or 10:00 a.m. to 11:00 a.m.
Thursday, July 9, 2009 Friday, July 10, 2009

Smith Barney
501 Madison Street
Huntsville, Alabama 35801

Light refreshments will be served

HOSTED BY:

Krista Dowling (404) 266-6349
Financial Advisor Krista.dowling@smithbarney.com
Jerry Shrout (256) 535-2842
Financial Advisor Jerry.Shrout@SmithBarney.com

Space is limited! RSVP to Virginia Nixon at (256) 535-2882 or Virginia.L.Nixon@SmithBarney.com

Alabama Respite has funding for caregivers in Calhoun County who are caring for a loved one age 19 and above with any type of disability or illness. We are reaching out to those caregivers who are not receiving respite through any other means.

This fund is provided by the Stringfellow Health Fund of the Community Foundation of Calhoun County. Please Contact Linda Lamberth for an application: 256 237 3683.

Alabama Lifespan Respite Resource Network (Alabama Respite) is assisting the Alabama Department of Rehabilitation Services by asking for your participation in a survey related to the health care needs of Alabama families of children with disabilities.

This survey focuses on health and related services that may be needed by children and youth with special health care needs (CYSHCN). It also addresses issues that show how well the system of care in Alabama works for these children and youth and their families. Your answers will help in the planning of better services and supports. The survey is administered by Children’s Rehabilitation Service (CRS), a division of the Alabama Department of Rehabilitation Services. CRS implements Alabama’s children with special health care needs program, mandated by Title V of the Social Security Act. This survey is a portion of the federally required five-year needs assessment.

Please take a few minutes and complete this survey. You may do this online at www.rehab.alabama.gov. There is also a survey for your child to fill out if they would like to express their needs.

Your assistance in this survey will insure better health care services. Your participation in this survey is confidential.

If you have any questions about the survey, please contact Alabama Respite.

Calhoun County Autism Online Support Group
For parent and caregivers of children on the autism spectrum.
For more information contact Tracy Robinson @
calhouncountyautisminfo@gmail.com
Calhoun County Autism Info Website
Local autism news, events, resources/providers
www.calhouncountyautisminfo.com

Join us for some summer fun!
SUMMER PROGRAM SPECIALLY DESIGNED FOR CHILDREN WITH AUTISM, ASPERGERS, DOWNS SYNDROME AND OTHER DEVELOPMENTAL DELAYS

Premier Collaborations Child Development Center

First Session
June 1 through June 26
Second Session
July 6 through July 31
Full Day or Half Day camps
Monday through Friday
Children 2-12 years of age
2:1 student teacher ratio

Premier Collaborations, 100 Jetplex Blvd., Huntsville, AL 35824. If you have any questions, contact Carol Vancil at 256-783-5151 or info@appliedbehavioralconcepts.net.
Registration fee is $150.00

www.appliedbehavioralconcepts.net

**** Several churches in Alabama have respite programs to serve children and/or adults with disabilities. So far, we have the following church respite programs listed on this web site:
(If your church is not listed, please contact me)

Birmingham
St. Marks United Methodist - Susan Lee
Birmingham, Alabama
205 620 9497

Oak Mountain Presbyterian Church
Birmingham, Alabama
995 9265

Indian Springs Baptist Church
Birmingham, Alabama
988 3662

Homewood Church of Christ
Homewood, Alabama
942 6232

Life Church of Birmingham
Trussville, Alabama
853 3755

Crosspoint Baptist Church
Argo, Alabama
682 2177

Huntsville
Faith Presbyterian Church
Huntsville, Al.
256-536-1355

Asbury United Methodist Church
Madison, Al.
256-837-0365

Weatherly Heights Baptist Church
Huntsville, Al.
256-881-6882

First United Methodist Church
Huntsville, Al.
256-534-9786

First Baptist Church
Hazel Green
256 828 0965

Decatur
Wesley Memorial United Methodist Church
Decatur, Al.
256-355-1842

St. Paul’s Lutheran Church
Decatur, Al. 35601

First Baptist Church
Decatur, Al.
256-353-0423

Athens/Limestone County
Friendship United Methodist Church
Athens, Alabama
256 232 7207

Lindsay Lane Baptist Church
Athens, Alabama
256 232 7207

Clements Baptist Church
Athens, Alabama
256 232 7207

East Highland Baptist Church
Athens, Alabama
256 232 7207

***** Alabama Respite now offers a new respite care fund for full time caregivers who live with a loved one with a diagnosis of mental retardation. These funds will specifically assist caregivers who are caring for children age 0-19 with cognitive developmental delay or mental retardation and adults age 19 and above with a diagnosis of mental retardation. Call 256 237 3683 in the Anniston area or Toll Free 866 737 8252 and speak to Linda to receive more information and an application.

****The Children's Trust Fund of Alabama once again has funded UCP HEARTS respite progorams across Alabama. These funds are for caregivers of children with disabilities or who are at risk of abuse and neglect. To find out where HEARTS is available in your are, call your local United Cerebral Palsy Center or call Alabama Respite at 256 237 3683

***You can help prevent child abuse and neglect. Did you ever think you could feel good about filing your state tax return? If you are receiving a refund on your Alabama taxes, we hope you will consider directing all or part of that refund to the Children's Trust Fund so they can continue the fight against child abuse and neglect. In the "Donations Check off" section of your Alabama tax return, please check CHILD ABUSE TRUST FUND and make a generous donation. For more information call 334-242-5710 or visit Children's Trust Fund web site at www.ctf.alabama.state.gov

****Healthy Marriages, Healthy Families,
and Responsible Fatherhood
Conference on Best Practices
February 3-5, 2009, Montgomery, Alabama
Renaissance Hotel and Conference Center

February 4 10:15-11:45
Give Me A Break: Respite Relief for Parents of Special Needs Children• - Linda Lamberth and Java Bennett

****STOP THE WAIT
DISABILITY POLICY RALLY

PURPOSE: THE STOP THE WAIT DISABILITY POLICY RALLY is a Statewide Rally to increase awareness of the needs of Alabama children and adults with disabilities and to advocate for continued state funding of existing services and increased state funding for children and adults who are waiting for needed services.

WHO IS INCLUDED: Children and Adults with Disabilities, Families of Children and Adults with Disabilities, Community-based Public and Private Agencies serving Children and Adults with Disabilities, State Departments and Agencies serving Children and Adults with Disabilities, Mayors and Members of City Councils, Chairmen and Members of County Commissions, Members of the Alabama Legislature, Governor Bob Riley and Members of his Cabinet, Alabama’s Congressional Delegation and their staffs.

WHEN: Wednesday, March 4, 2009 at 11:00 a.m.

WHERE: In front of the Alabama State House, 11 South Union Street, Montgomery

PROSPECTIVE 2009 SPONSORS ARE:
The Arc of Alabama, Inc.
People First of Alabama
Alabama Conference of Executives of The Arc
Alabama Council for Developmental Disabilities
Alabama Council of Community Mental Health Boards
Alabama Disabilities Advocacy Program
Alabama Association of MR/DD Boards
Alabama Head Injury Foundation
Alabama Department of Mental Health and Mental Retardation, Office of Consumer Empowerment
Glenwood, Inc.
Greater Birmingham Independent Living Center
Independent Living Center of Mobile
Montgomery Independent Living Center
Volunteers of America-Southeast, Mobile

FOR SPONSORHIPS AND FURTHER INFORMATION, CONTACT:
Thomas B. Holmes, Executive Director
The Arc of Alabama, Inc.
650 South McDonough Street, Suite B
P.O. Box 1206
Montgomery, AL 36102-1206
Telephone: (334) 262-7688 or Toll-free: 1-866-243-9557
Fax: (334) 834-9737
Email: info@TheArcofAlabama.com

****A support group for families who have children with special needs will begin in Centerpoint in August. SEEDS OF ENCOURAGEMENT FOR ALABAMA's mission is "to reachout to people in the commynity with special needs children and provide support". The group will meet the last Thursday of everymonth at 7 p.m. at 2321 Center Point Parkway, Birmingham, Alabama. For more information please call the group Coordinator, Felicia Agnew, at 205 856 5555 or email feliciaagnew@yahoo.com

*** Alabama respite to develop district consumer advisory councils

In order to meet the needs in different areas of Alabama, we are looking for caregivers and those who work with caregivers who would be interested in developing a local Respite Services Coordinating Council. We hope to establish seven of these Councils in each of our Congressional Districts.

If you have an interest in working to increase respite funding and want to help educate caregivers on the need for respite, please let us know. Informing our legislators on the need for respite will be another important goal of each Council.
Contact us, we will be forming a group in your part of the State soon. 256 237 3683.

*** Make extra money and provide a needed service at the same time!!

IF YOU WOULD LIKE TO USE THIS WEBSITE TO POST AN EVENT OR HAVE A PROGRAM THAT WOULD BE OF INTEREST TO CAREGIVERS PLEASE CONTACT US AT ALABAMARESPITE@AOL.COM


Alabama Lifespan Respite Resource Network
2505 Inverness Lane
Birmingham, Alabama 35242
1-205-991-0927
1-866-RESTALA
alabamarespite@aol.com
This website funded in part by grants from:

Alabama Council for Developmental Disabilities
The Daniel Foundation
The Caring Foundation
Hill Crest Foundation

Alabama Lifespan Respite Resource Network (ALRRN) is a project of United Cerebral Palsy (UCP) of Huntsville and Tennessee Valley.

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